Rare Disease Day 2009

EDM number 914 in 2008-09, proposed by Evan Harris on 26/02/2009.
Categorised under the topic of Diseases.

That this House acknowledges the second Pan-European Rare Disease Day on 28 February 2009, which successfully highlights rare diseases and the challenges faced by patients, carers, healthcare professionals and policy makers, working to ensure the highest quality of services and available treatments are accessible to often isolated and vulnerable people; notes that there are over 6,000 rare conditions identified, affecting more than 3.5 million people in the UK; further notes that 75 per cent. of those with a rare condition are children and 30 per cent. die before the age of five years; welcomes the newly-established campaign Rare Disease UK; and urges the Government to move forward with the European Commission's Communciation to create a National Plan for rare diseases.

This motion has been signed by a total of 108 MPs, 4 of these signatures have been withdrawn.

MP	Date	Constituency	Party	Type
Evan Harris	26/02/2009	Oxford West & Abingdon	Liberal Democrat	Proposed
Mark Durkan	26/02/2009	Foyle	Social Democratic and Labour Party	Seconded
Bob Russell	26/02/2009	Colchester	Liberal Democrat	Seconded
Vincent Cable	26/02/2009	Twickenham	Liberal Democrat	Seconded
Mark Hunter	27/02/2009	Cheadle	Liberal Democrat	Signed
Lee Scott	27/02/2009	Ilford North	Conservative	Signed
Peter Bottomley	27/02/2009	Worthing West	Conservative	Signed
Andrew Dismore	27/02/2009	Hendon	Labour	Signed
John McDonnell	27/02/2009	Hayes & Harlington	Labour	Signed
Lynne Jones	27/02/2009	Birmingham, Selly Oak	Labour	Signed
Jim Devine	02/03/2009	Livingston	Labour	Signed
Robert Wareing	02/03/2009	Liverpool, West Derby	Independent	Signed
Desmond Turner	02/03/2009	Brighton, Kemptown	Labour	Signed
Paul Truswell	02/03/2009	Pudsey	Labour	Signed
Tim Boswell	02/03/2009	Daventry	Conservative	Signed
Anne Begg	02/03/2009	Aberdeen South	Labour	Signed
Andrew George	02/03/2009	St Ives	Liberal Democrat	Signed
Paul Flynn	02/03/2009	Newport West	Labour	Signed
Ann Cryer	02/03/2009	Keighley	Labour	Signed
Alan Meale	02/03/2009	Mansfield	Labour	Signed
David Lepper	02/03/2009	Brighton, Pavilion	Labour	Signed
Brian Iddon	02/03/2009	Bolton South East	Labour	Signed
Lindsay Hoyle	02/03/2009	Chorley	Labour	Signed
Mike Hancock	03/03/2009	Portsmouth South	Liberal Democrat	Signed
John Austin	03/03/2009	Erith & Thamesmead	Labour	Signed
Rudi Vis	03/03/2009	Finchley & Golders Green	Labour	Signed
Danny Alexander	03/03/2009	Inverness, Nairn, Badenoch & Strathspey	Liberal Democrat	Signed
John Leech	03/03/2009	Manchester, Withington	Liberal Democrat	Signed
Stephen Williams	03/03/2009	Bristol West	Liberal Democrat	Signed
David Drew	03/03/2009	Stroud	Labour	Signed
Jim Dobbin	03/03/2009	Heywood & Middleton	Labour	Signed
Jeremy Corbyn	03/03/2009	Islington North	Labour	Signed
Gordon Prentice	03/03/2009	Pendle	Labour	Signed
David Heyes	03/03/2009	Ashton-under-Lyne	Labour	Signed
Laura Moffatt	03/03/2009	Crawley	Labour	Signed
Edward O'Hara	03/03/2009	Knowsley South	Labour	Signed
Gregory Campbell	03/03/2009	East Londonderry	DUP	Signed
Martin Caton	03/03/2009	Gower	Labour	Signed
Daniel Rogerson	04/03/2009	North Cornwall	Liberal Democrat	Signed
Phil Willis	04/03/2009	Harrogate & Knaresborough	Liberal Democrat	Signed
Nigel Dodds	04/03/2009	Belfast North	DUP	Signed
Tom Clarke	04/03/2009	Coatbridge, Chryston & Bellshill	Labour	Signed
Ronnie Campbell	04/03/2009	Blyth Valley	Labour	Signed
Doug Naysmith	04/03/2009	Bristol North West	Labour	Signed
William McCrea	04/03/2009	South Antrim	DUP	Signed
Chris McCafferty	04/03/2009	Calder Valley	Labour	Signed
Alan Simpson	04/03/2009	Nottingham South	Labour	Signed
Tony Lloyd	05/03/2009	Manchester Central	Labour	Signed
Dari Taylor	06/03/2009	Stockton South	Labour	Signed
Greg Mulholland	06/03/2009	Leeds North West	Liberal Democrat	Signed
Paul Rowen	09/03/2009	Rochdale	Liberal Democrat	Signed
David Anderson	09/03/2009	Blaydon	Labour	Signed
Betty Williams	09/03/2009	Conwy	Labour	Signed
David Borrow	09/03/2009	South Ribble	Labour	Signed
Neil Gerrard	09/03/2009	Walthamstow	Labour	Signed
Mark Williams	10/03/2009	Ceredigion	Liberal Democrat	Signed
Susan Kramer	10/03/2009	Richmond Park	Liberal Democrat	Signed
Roger Godsiff	10/03/2009	Birmingham, Sparkbrook & Small Heath	Labour	Signed
Janet Dean	10/03/2009	Burton	Labour	Signed
Brian Jenkins	10/03/2009	Tamworth	Labour	Signed
Andrew MacKay	11/03/2009	Bracknell	Conservative	Signed
Lindsay Roy	11/03/2009	Glenrothes	Labour	Signed
Adrian Sanders	12/03/2009	Torbay	Liberal Democrat	Signed
Frank Cook	12/03/2009	Stockton North	Labour	Signed
Jim Dowd	12/03/2009	Lewisham West	Labour	Signed
Mark Todd	12/03/2009	South Derbyshire	Labour	Signed
Adam Price	13/03/2009	Carmarthen East & Dinefwr	Plaid Cymru	Signed
Iris Robinson	16/03/2009	Strangford	DUP	Signed
Richard Ottaway	17/03/2009	Croydon South	Conservative	Signed
Tony Baldry	17/03/2009	Banbury	Conservative	Signed
Tim Farron	18/03/2009	Westmorland & Lonsdale	Liberal Democrat	Signed
Gary Streeter	18/03/2009	South West Devon	Conservative	Signed
Gordon Marsden	18/03/2009	Blackpool South	Labour	Signed
Robert Key	18/03/2009	Salisbury	Conservative	Signed
Kate Hoey	19/03/2009	Vauxhall	Labour	Signed
Lembit	19/03/2009	Montgomeryshire	Liberal Democrat	Signed
David Curry	19/03/2009	Skipton & Ripon	Conservative	Signed
Michael Ancram	19/03/2009	Devizes	Conservative	Signed
Roger Williams	19/03/2009	Brecon & Radnorshire	Liberal Democrat	Signed
Willie Rennie	19/03/2009	Dunfermline & Fife West	Liberal Democrat	Signed
Robert Smith	23/03/2009	Aberdeenshire West & Kincardine	Liberal Democrat	Signed
Martin Linton	24/03/2009	Battersea	Labour	Signed
Nicholas Soames	25/03/2009	Mid Sussex	Conservative	Signed
Jim Cunningham	25/03/2009	Coventry South	Labour	Signed
Norman Baker	25/03/2009	Lewes	Liberal Democrat	Signed
Roger Berry	25/03/2009	Kingswood	Labour	Signed
Linda Riordan	25/03/2009	Halifax	Labour	Signed
Diane Abbott	26/03/2009	Hackney North & Stoke Newington	Labour	Signed
Nick Harvey	26/03/2009	North Devon	Liberal Democrat	Signed
Charles Kennedy	27/03/2009	Ross, Skye & Lochaber	Liberal Democrat	Signed
Andrew Pelling	30/03/2009	Croydon Central	Independent	Signed
David Laws	31/03/2009	Yeovil	Liberal Democrat	Signed
Kim Howells	02/04/2009	Pontypridd	Labour	Signed
Tom Brake	21/04/2009	Carshalton & Wallington	Liberal Democrat	Signed
Norman Lamb	21/04/2009	North Norfolk	Liberal Democrat	Signed
Jo Swinson	22/04/2009	East Dunbartonshire	Liberal Democrat	Signed
Bill Etherington	23/04/2009	Sunderland North	Labour	Signed
Lynne Featherstone	29/04/2009	Hornsey & Wood Green	Liberal Democrat	Signed
Phyllis Starkey	05/05/2009	Milton Keynes South West	Labour	Signed
Alan Beith	05/05/2009	Berwick-upon-Tweed	Liberal Democrat	Signed
Peter Bone	06/05/2009	Wellingborough	Conservative	Signed
Jennifer Willott	07/05/2009	Cardiff Central	Liberal Democrat	Signed
Ian Stewart	12/05/2009	Eccles	Labour	Signed
Humfrey Malins	01/06/2009	Woking	Conservative	Signed
Ian Gibson	Unknown			Withdrawn
John Bercow	Unknown			Withdrawn
Michael Jabez Foster	Unknown			Withdrawn
George Mudie	Unknown			Withdrawn

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