47482
2014-15
639
Access To Translarna Through The NHS
David Anderson
2014-12-17
That this House is deeply concerned at the decision of NHS England to halt its assessment of the Duchenne muscular dystrophy treatment, Translarna, whilst it reconsiders how it assesses new treatments; understands that Translarna, which received conditional approval from the European Commission (EC) in July 2014, is the first drug to treat an underlying genetic cause of Duchenne muscular dystrophy; notes that under the terms of the EC's conditional approval Translarna would be made available to boys whose Duchenne is caused by a nonsense mutation, who are over five and can still walk; further notes that NHS England has taken its decision at a very late stage of the assessment process; acknowledges the deep concern of families at this delay, who fear that it could prevent their sons from accessing Translarna before they lose the ability to walk; and joins the calls of the Muscular Dystrophy Campaign for NHS England to take emergency steps to ensure that Translarna is made available to the children it could help by April 2015.
Diseases
Health services
David Anderson
2014-12-17
Proposed
Blaydon
Labour
Peter Bottomley
2014-12-17
Seconded
Worthing West
Conservative
Ian Mearns
2014-12-17
Seconded
Gateshead
Labour
Bob Russell
2014-12-17
Seconded
Colchester
Liberal Democrat
Ian Lavery
2014-12-18
Seconded
Wansbeck
Labour
Greg Mulholland
2014-12-18
Seconded
Leeds North West
Liberal Democrat
Mary Glindon
2014-12-18
Signed
North Tyneside
Labour
Jeremy Corbyn
2014-12-18
Signed
Islington North
Labour
Paul Flynn
2015-01-05
Signed
Newport West
Labour
Mark Durkan
2015-01-05
Signed
Foyle
Social Democratic and Labour Party
Jim Shannon
2015-01-06
Signed
Strangford
DUP
Virendra Sharma
2015-01-06
Signed
Ealing, Southall
Labour
Martin Caton
2015-01-06
Signed
Gower
Labour
Margaret Ritchie
2015-01-06
Signed
South Down
Social Democratic and Labour Party
John McDonnell
2015-01-06
Signed
Hayes and Harlington
Labour
Alan Meale
2015-01-06
Signed
Mansfield
Labour
David Ward
2015-01-06
Signed
Bradford East
Liberal Democrat
David Crausby
2015-01-06
Signed
Bolton North East
Labour
Kelvin Hopkins
2015-01-06
Signed
Luton North
Labour
William McCrea
2015-01-06
Signed
South Antrim
DUP
David Simpson
2015-01-07
Signed
Upper Bann
DUP
Jeffrey M Donaldson
2015-01-07
Signed
Lagan Valley
DUP
Ronnie Campbell
2015-01-07
Signed
Blyth Valley
Labour
Andrew Miller
2015-01-07
Signed
Ellesmere Port and Neston
Labour
John Leech
2015-01-08
Signed
Manchester, Withington
Liberal Democrat
Graham Stringer
2015-01-12
Signed
Blackley and Broughton
Labour
Sandra Osborne
2015-01-13
Signed
Ayr, Carrick and Cumnock
Labour
Clive Betts
2015-01-13
Signed
Sheffield South East
Labour
Michael Connarty
2015-01-13
Signed
Linlithgow and East Falkirk
Labour
Jimmy Hood
2015-01-19
Signed
Lanark and Hamilton East
Labour
Fiona O'Donnell
2015-01-28
Signed
East Lothian
Labour
George Galloway
2015-02-11
Signed
Bradford West
Respect