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Atypical Haemolytic Uremic Syndrome

EDM number 215 in 2012-13, proposed by Alan Meale on 18/06/2012.
Categorised under the topics of Diseases and Health services.

That this House is aware that atypical haemolytic uremic syndrome (aHUS) is a very rare disease causing irreversible kidney failure and for which until recently there has been no effective treatment; notes that there are fewer than 200 patients suffering from the condition in the UK most of whom have an underlying immune system abnormality which is thought to be the cause of the disease; understands that a new medicine called eculizumab is now licensed for the treatment of this illness, with interim results from its clinical trials suggesting that it significantly improves patient outcomes by preventing kidney failures and, for those on dialysis, enables a successful kidney transplant; further notes that the Advisory Group for National Specialised Sevicesis currently considering an application for a national specialised service for the diagnosis and treatment of aHUS in the UK which would end existing postcode inequalities and ensure eculizumab is available to all patients who need the drug in England; and believes such an outcome should be reached at the earliest opportunity.

This motion has been signed by a total of 19 MPs.

MPDateConstituencyPartyType
Alan Meale18/06/2012MansfieldLabourProposed
Mark Durkan18/06/2012FoyleSocial Democratic and Labour PartySeconded
Peter Bottomley18/06/2012Worthing WestConservativeSeconded
Jim Shannon19/06/2012StrangfordDUPSeconded
David Simpson19/06/2012Upper BannDUPSeconded
William McCrea19/06/2012South AntrimDUPSeconded
Andrew George19/06/2012St IvesLiberal DemocratSigned
Graham Stringer19/06/2012Blackley and BroughtonLabourSigned
Jim Dobbin19/06/2012Heywood and MiddletonLabourSigned
Jeremy Corbyn19/06/2012Islington NorthLabourSigned
Margaret Ritchie19/06/2012South DownSocial Democratic and Labour PartySigned
John McDonnell20/06/2012Hayes and HarlingtonLabourSigned
Ronnie Campbell20/06/2012Blyth ValleyLabourSigned
Martin Caton20/06/2012GowerLabourSigned
Paul Flynn20/06/2012Newport WestLabourSigned
Sandra Osborne21/06/2012Ayr, Carrick and CumnockLabourSigned
Kelvin Hopkins27/06/2012Luton NorthLabourSigned
David Crausby11/07/2012Bolton North EastLabourSigned
Alasdair McDonnell11/09/2012Belfast SouthSocial Democratic and Labour PartySigned

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