Parliament Website

NHS England Bureaucracy

EDM number 264 in 2015-16, proposed by Greg Mulholland on 07/07/2015.
Categorised under the topics of Diseases and Health services.

That this House expresses extremely strong concern that despite 14 months having passed since the treatment Vimizim was licensed by the European Medicines Agency in April 2014, it remains unavailable for use through NHS England; notes a series of broken commitments on decision dates, moved from 25 June 2015 to 30 June 2015 to 1 July 2015 to eventually 2 July 2015; further notes NHS England's eventual decision was to delay making a decision until October 2015; believes NHS England ultimately failed to make a decision on access to the treatments Vimizim and Translarna, while those who need Everolimus treatment remain in the dark about the possibility of a prescribing policy; strongly believes that it is unacceptable that 218 children and young adults with Morquio syndrome, Duchenne muscular dystrophy and tuberous sclerosis complex are being repeatedly let down and suffering the consequences of bureaucracy; and believes that those with ultra-rare progressive conditions do not have the luxury of time and need immediate access to these licensed life-changing treatments.

This motion has been signed by a total of 13 MPs.

MPDateConstituencyPartyType
Greg Mulholland07/07/2015Leeds North WestLiberal DemocratProposed
Mark Durkan07/07/2015FoyleSocial Democratic and Labour PartySeconded
Margaret Ritchie08/07/2015South DownSocial Democratic and Labour PartySeconded
Alan Meale08/07/2015MansfieldLabourSeconded
Jim Shannon08/07/2015StrangfordDUPSeconded
Jeremy Corbyn09/07/2015Islington NorthLabourSeconded
Rachael Maskell13/07/2015York CentralLabour/Co-operativeSigned
Virendra Sharma14/07/2015Ealing, SouthallLabourSigned
David Anderson14/07/2015BlaydonLabourSigned
Andrew McDonald16/07/2015MiddlesbroughLabourSigned
Ruth Smeeth20/07/2015Stoke-on-Trent NorthLabourSigned
Alasdair McDonnell21/07/2015Belfast SouthSocial Democratic and Labour PartySigned
Marie Rimmer12/10/2015St Helens South and WhistonLabourSigned

Download raw data as csv or xml.