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Down's Syndrome, Don't Screen Us Out Campaign

EDM number 44 in 2016-17, proposed by Nigel Evans on 19/05/2016.
Categorised under the topics of Children and families, Diseases and Health education and preventive medicine.

That this House joins people with Down’s syndrome, their families and advocacy groups supporting the Don’t Screen Us Out campaign in being deeply concerned that the UK National Screening Committee has proposed that cell-free DNA (cfDNA) testing be introduced into the UK’s Fetal Anomaly Screening Programme (FASP); acknowledges that these proposals are projected to lead to 25 fewer miscarriages, but are also projected to result in 92 more children with Down’s syndrome being terminated each year, given that 90 per cent of babies identified with Down’s syndrome are terminated annually, having a profound and discriminatory effect on the community of people with Down’s syndrome; notes that this violates the UK’s treaty obligations to the UN Convention of the Rights of Persons with Disabilities (CRPD); considers that the current lack of non-directional medial support and balanced information for parents whose child is diagnosed with foetal disability constitutes a failure to implement article 23, section 3 of the CRPD which calls for early and comprehensive support for children with Down’s and their families; calls on the Government to delay implementation of cfDNA screening until reforms are introduced that adequately deliver this support; and urges that a formal inquiry be undertaken to ensure the FASP is fully compliant with the CRPD and other relevant disability rights standards.

This motion has been signed by a total of 34 MPs.

Nigel Evans19/05/2016Ribble ValleyConservativeProposed
Alan Meale23/05/2016MansfieldLabourSeconded
Jim Shannon23/05/2016StrangfordDUPSeconded
Fiona Bruce23/05/2016CongletonConservativeSeconded
Mark Durkan23/05/2016FoyleSocial Democratic and Labour PartySeconded
Paul Monaghan23/05/2016Caithness, Sutherland and Easter RossScottish National PartySeconded
Keith Vaz24/05/2016Leicester EastLabourSigned
Jim Cunningham24/05/2016Coventry SouthLabourSigned
Margaret Ritchie24/05/2016South DownSocial Democratic and Labour PartySigned
Robert Flello24/05/2016Stoke-on-Trent SouthLabourSigned
David Warburton24/05/2016Somerton and FromeConservativeSigned
Martin Docherty24/05/2016West DunbartonshireScottish National PartySigned
Gavin Robinson24/05/2016Belfast EastDUPSigned
Mary Glindon25/05/2016North TynesideLabourSigned
David Amess25/05/2016Southend WestConservativeSigned
Sammy Wilson06/06/2016East AntrimDUPSigned
Nigel Dodds07/06/2016Belfast NorthDUPSigned
Maria Caulfield07/06/2016LewesConservativeSigned
Chris Evans08/06/2016IslwynLabourSigned
Geraint Davies27/06/2016Swansea WestLabourSigned
Jess Phillips04/07/2016Birmingham, YardleyLabourSigned
Valerie Vaz04/07/2016Walsall SouthLabourSigned
Khalid Mahmood05/09/2016Birmingham, Perry BarrLabourSigned
Douglas Chapman10/10/2016Dunfermline and West FifeScottish National PartySigned
Ian Mearns10/10/2016GatesheadLabourSigned
Stephen Timms13/10/2016East HamLabourSigned
Colleen Fletcher18/10/2016Coventry North EastLabourSigned
Jeffrey M Donaldson20/10/2016Lagan ValleyDUPSigned
Kirsten Oswald02/11/2016East RenfrewshireScottish National PartySigned
Alison McGovern07/11/2016Wirral SouthLabourSigned
Stuart Donaldson16/11/2016West Aberdeenshire and KincardineScottish National PartySigned
Michael Weir18/11/2016AngusScottish National PartySigned
Catherine McKinnell09/01/2017Newcastle upon Tyne NorthLabourSigned
Patricia Gibson18/04/2017North Ayrshire and ArranScottish National PartySigned

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