Adrenoleukodystrophy Awareness Week, 21st October - 28th October 2004
EDM number 1677 in 2003-04, proposed by Andrew Lansley on 16/09/2004.
That this House congratulates the ALDFST, or Adrenoleukodystrophy Family Support Trust, for organising the ALD Awareness Week, taking place this year from 21st until 28th October; notes that the society has been successful over the last decade since it was founded by the parents of an ALD sufferer in August 1993 to help and support ALD sufferers and their families and to raise the public's awareness of this fatal disease; notes the ALD, also known as Addison-Schilder disease, is an hereditary neurological disease affecting almost exclusively males, the most severe form occurring in boys between the ages of four and 10; and congratulates the society's volunteers across the country, who will be organising events throughout the awareness week.
This motion has been signed by a total of 58 MPs.
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