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Access To Translarna Through The NHS

EDM number 639 in 2014-15, proposed by David Anderson on 17/12/2014.
Categorised under the topics of Diseases and Health services.

That this House is deeply concerned at the decision of NHS England to halt its assessment of the Duchenne muscular dystrophy treatment, Translarna, whilst it reconsiders how it assesses new treatments; understands that Translarna, which received conditional approval from the European Commission (EC) in July 2014, is the first drug to treat an underlying genetic cause of Duchenne muscular dystrophy; notes that under the terms of the EC's conditional approval Translarna would be made available to boys whose Duchenne is caused by a nonsense mutation, who are over five and can still walk; further notes that NHS England has taken its decision at a very late stage of the assessment process; acknowledges the deep concern of families at this delay, who fear that it could prevent their sons from accessing Translarna before they lose the ability to walk; and joins the calls of the Muscular Dystrophy Campaign for NHS England to take emergency steps to ensure that Translarna is made available to the children it could help by April 2015.

This motion has been signed by a total of 32 MPs.

David Anderson17/12/2014BlaydonLabourProposed
Peter Bottomley17/12/2014Worthing WestConservativeSeconded
Ian Mearns17/12/2014GatesheadLabourSeconded
Bob Russell17/12/2014ColchesterLiberal DemocratSeconded
Ian Lavery18/12/2014WansbeckLabourSeconded
Greg Mulholland18/12/2014Leeds North WestLiberal DemocratSeconded
Mary Glindon18/12/2014North TynesideLabourSigned
Jeremy Corbyn18/12/2014Islington NorthLabourSigned
Paul Flynn05/01/2015Newport WestLabourSigned
Mark Durkan05/01/2015FoyleSocial Democratic and Labour PartySigned
Jim Shannon06/01/2015StrangfordDUPSigned
Virendra Sharma06/01/2015Ealing, SouthallLabourSigned
Martin Caton06/01/2015GowerLabourSigned
Margaret Ritchie06/01/2015South DownSocial Democratic and Labour PartySigned
John McDonnell06/01/2015Hayes and HarlingtonLabourSigned
Alan Meale06/01/2015MansfieldLabourSigned
David Ward06/01/2015Bradford EastLiberal DemocratSigned
David Crausby06/01/2015Bolton North EastLabourSigned
Kelvin Hopkins06/01/2015Luton NorthLabourSigned
William McCrea06/01/2015South AntrimDUPSigned
David Simpson07/01/2015Upper BannDUPSigned
Jeffrey M Donaldson07/01/2015Lagan ValleyDUPSigned
Ronnie Campbell07/01/2015Blyth ValleyLabourSigned
Andrew Miller07/01/2015Ellesmere Port and NestonLabourSigned
John Leech08/01/2015Manchester, WithingtonLiberal DemocratSigned
Graham Stringer12/01/2015Blackley and BroughtonLabourSigned
Sandra Osborne13/01/2015Ayr, Carrick and CumnockLabourSigned
Clive Betts13/01/2015Sheffield South EastLabourSigned
Michael Connarty13/01/2015Linlithgow and East FalkirkLabourSigned
Jimmy Hood19/01/2015Lanark and Hamilton EastLabourSigned
Fiona O'Donnell28/01/2015East LothianLabourSigned
George Galloway11/02/2015Bradford WestRespectSigned

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