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Hypermobility Syndromes Awareness Week

EDM number 1131 in 2015-16, proposed by Norman Lamb on 24/02/2016.
Categorised under the topics of Diseases and Health education and preventive medicine.

That this House welcomes the first Hypermobility Syndromes Awareness Week campaign organised by the Hypermobility Syndromes Association (HMSA), taking place from 22 to 29 February 2016, which encourages earlier recognition and diagnosis and needs-led interventions; notes that around 1.5 million people in the UK are affected by a hypermobility syndrome, but that 55 per cent of people take 10 years to reach a diagnosis, impacting on not just physical health but on relationships, education and work opportunities and potentially increasing socio-economic dependency; further notes that hypermobility syndromes can be rare, genetic, and potentially life-threatening; is concerned that there is a lack of specialist services in the UK and that services which are available are fragmented and difficult to access when needed; notes that late or lack of diagnosis increases the burden on health and social services due to repeat presentations for complex and multi-systemic issues which may be avoidable with earlier intervention; understands the importance of earlier diagnosis and access to treatment in promoting people's physical health and mental wellbeing; encourages hon. Members to raise awareness of HMSA's website, which has information and signposting advice to help people understand their conditions; and congratulates HMSA, which is primarily run by volunteers with one of the hypermobility syndromes, for organising Hypermobility Syndromes Awareness Week and its other important work.

This motion has been signed by a total of 30 MPs.

Norman Lamb24/02/2016North NorfolkLiberal DemocratProposed
Peter Bottomley25/02/2016Worthing WestConservativeSeconded
Mark Williams26/02/2016CeredigionLiberal DemocratSeconded
Margaret Greenwood26/02/2016Wirral WestLabourSeconded
Kirsty Blackman29/02/2016Aberdeen NorthScottish National PartySeconded
Angela Crawley29/02/2016Lanark and Hamilton EastScottish National PartySeconded
Steven Paterson29/02/2016StirlingScottish National PartySigned
Stephen Timms29/02/2016East HamLabourSigned
Angus MacNeil29/02/2016Na h-Eileanan an IarScottish National PartySigned
Jim Shannon29/02/2016StrangfordDUPSigned
Lisa Cameron01/03/2016East Kilbride, Strathaven and LesmahagowScottish National PartySigned
Phil Boswell01/03/2016Coatbridge, Chryston and BellshillScottish National PartySigned
Lady Hermon01/03/2016North DownIndependentSigned
David Simpson01/03/2016Upper BannDUPSigned
Alan Meale01/03/2016MansfieldLabourSigned
Hannah Bardell01/03/2016LivingstonScottish National PartySigned
Tasmina Sheikh01/03/2016Ochil and South PerthshireScottish National PartySigned
Margaret Ritchie01/03/2016South DownSocial Democratic and Labour PartySigned
Calum Kerr01/03/2016Berwickshire, Roxburgh and SelkirkScottish National PartySigned
Gavin Newlands01/03/2016Paisley and Renfrewshire NorthScottish National PartySigned
Mark Durkan01/03/2016FoyleSocial Democratic and Labour PartySigned
Ian Mearns03/03/2016GatesheadLabourSigned
Drew Hendry03/03/2016Inverness, Nairn, Badenoch and StrathspeyScottish National PartySigned
John Nicolson08/03/2016East DunbartonshireScottish National PartySigned
Gary Streeter08/03/2016South West DevonConservativeSigned
Tommy Sheppard09/03/2016Edinburgh EastScottish National PartySigned
Joanna Cherry21/03/2016Edinburgh South WestScottish National PartySigned
David Amess21/03/2016Southend WestConservativeSigned
Corri Wilson11/04/2016Ayr, Carrick and CumnockScottish National PartySigned
Yasmin Qureshi18/04/2016Bolton South EastLabourSigned

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