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Pulmonary Arterial Hypertension Treatment Campaign

EDM number 1318 in 2008-09, proposed by Chris Ruane on 22/04/2009.
Categorised under the topics of Health services and Medicine.

That this House welcomes the announcement by the National Institute for Health and Clinical Excellence (NICE) that it has, following an outcry from patient groups and clinicians and with the agreement of Ministers, removed from its work programme the proposed appraisal of drugs for the treatment of pulmonary arterial hypertension (PH); notes that 75 per cent. of PH patients are now alive two years after diagnosis and that if the earlier, preliminary, recommendations from NICE had been carried out, it would have been a sentence of death for a significant number of the PH patient community; further notes that these lifesaving treatments are subject to national specialist commissioning arrangements and are only available in eight specialist and world-renowned PH centres in the UK; is pleased that NICE and Ministers recognise that NICE could not add value to this existing guidance and so removed it from the work programme; congratulates the Pulmonary Hypertension Association UK on its campaign to ensure patients have access to these lifesaving drugs; and congratulates Ministers and NICE for taking a common sense approach to this issue.

This motion has been signed by a total of 70 MPs, 1 of these signatures have been withdrawn.

MPDateConstituencyPartyType
Chris Ruane22/04/2009Vale of ClwydLabourProposed
Andrew George22/04/2009St IvesLiberal DemocratSeconded
Lindsay Hoyle22/04/2009ChorleyLabourSeconded
Mike Hancock23/04/2009Portsmouth SouthLiberal DemocratSeconded
Alan Meale23/04/2009MansfieldLabourSeconded
Greg Pope23/04/2009HyndburnLabourSeconded
Peter Bottomley23/04/2009Worthing WestConservativeSigned
Desmond Turner23/04/2009Brighton, KemptownLabourSigned
David Taylor23/04/2009North West LeicestershireLabourSigned
Bill Etherington23/04/2009Sunderland NorthLabourSigned
Ann Cryer23/04/2009KeighleyLabourSigned
Jeremy Corbyn23/04/2009Islington NorthLabourSigned
John Pugh24/04/2009SouthportLiberal DemocratSigned
Malcolm Moss24/04/2009North East CambridgeshireConservativeSigned
Andrew Dismore24/04/2009HendonLabourSigned
Kelvin Hopkins27/04/2009Luton NorthLabourSigned
Betty Williams27/04/2009ConwyLabourSigned
Jim Dobbin27/04/2009Heywood and MiddletonLabourSigned
Lynne Jones27/04/2009Birmingham, Selly OakLabourSigned
Adrian Sanders27/04/2009TorbayLiberal DemocratSigned
Ian McCartney28/04/2009MakerfieldLabourSigned
Annette Brooke28/04/2009Mid Dorset and North PooleLiberal DemocratSigned
Janet Dean28/04/2009BurtonLabourSigned
Mark Durkan28/04/2009FoyleSocial Democratic and Labour PartySigned
Andrew Stunell28/04/2009Hazel GroveLiberal DemocratSigned
John Leech28/04/2009Manchester, WithingtonLiberal DemocratSigned
Jim Devine28/04/2009LivingstonLabourSigned
Phil Willis29/04/2009Harrogate and KnaresboroughLiberal DemocratSigned
Mark Hunter29/04/2009CheadleLiberal DemocratSigned
Dan Rogerson29/04/2009North CornwallLiberal DemocratSigned
Linda Riordan29/04/2009HalifaxLabourSigned
Diane Abbott29/04/2009Hackney North and Stoke NewingtonLabourSigned
Hywel Francis29/04/2009AberavonLabourSigned
Ian Cawsey29/04/2009Brigg and GooleLabourSigned
Martin Caton29/04/2009GowerLabourSigned
Ronnie Campbell29/04/2009Blyth ValleyLabourSigned
William McCrea29/04/2009South AntrimDUPSigned
Lady Hermon29/04/2009North DownUUPSigned
David Drew29/04/2009StroudLabourSigned
Andy Reed30/04/2009LoughboroughLabourSigned
Brian Jenkins30/04/2009TamworthLabourSigned
Elfyn Llwyd30/04/2009Meirionnydd Nant ConwyPlaid CymruSigned
John Thurso05/05/2009Caithness, Sutherland and Easter RossLiberal DemocratSigned
Roger Williams05/05/2009Brecon and RadnorshireLiberal DemocratSigned
Joan Walley05/05/2009Stoke-on-Trent NorthLabourSigned
Ian Stewart05/05/2009EcclesLabourSigned
Jim Cunningham05/05/2009Coventry SouthLabourSigned
Harry Cohen05/05/2009Leyton and WansteadLabourSigned
Lembit 05/05/2009MontgomeryshireLiberal DemocratSigned
Andrew Miller05/05/2009Ellesmere Port and NestonLabourSigned
Alasdair McDonnell05/05/2009Belfast SouthSocial Democratic and Labour PartySigned
Andrew MacKinlay05/05/2009ThurrockLabourSigned
David Heath05/05/2009Somerton & FromeLiberal DemocratSigned
Michael Clapham05/05/2009Barnsley West and PenistoneLabourSigned
Alan Simpson06/05/2009Nottingham SouthLabourSigned
Sandra Osborne06/05/2009Ayr, Carrick and CumnockLabourSigned
Rudi Vis06/05/2009Finchley and Golders GreenLabourSigned
Pete Wishart06/05/2009Perth and North PerthshireScottish National PartySigned
Kim Howells07/05/2009PontypriddLabourSigned
Mike Wood08/05/2009Batley and SpenLabourSigned
Julie Morgan13/05/2009Cardiff NorthLabourSigned
John Grogan14/05/2009SelbyLabourSigned
Eric Illsley01/06/2009Barnsley CentralLabourSigned
David Crausby04/06/2009Bolton North EastLabourSigned
Iris Robinson30/06/2009StrangfordDUPSigned
Nigel Dodds02/07/2009Belfast NorthDUPSigned
Julia Goldsworthy09/07/2009Falmouth and CamborneLiberal DemocratSigned
Joan Humble21/07/2009Blackpool North and FleetwoodLabourSigned
Frank Cook13/10/2009Stockton NorthLabourSigned
Lyn BrownUnknownWithdrawn

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