National Strategy For Motor Neurone Disease
EDM number 2219 in 2008-09, proposed by Mark Todd on 03/11/2009.
Categorised under the topics of Diseases and Health services.
That this House endorses the call by the Motor Neurone Disease Association for a national strategy for motor neurone disease (MND) and believes that such a strategy would lead to enhanced cost-effectiveness and good practice; supports the implementation of the National Service Framework for Long-Term Neurological Conditions; is dismayed that no official national clinical guidance or approach exists in relation to MND; notes the extreme cruelty of motor neurone disease, which dramatically curtails lives and traps an often healthy mind in a failing and incapacitated body; and believes that a national strategy is urgently needed in order to address the inequity of access to best practice in care for people with MND and to ensure as high a quality of life as possible and dignity in death.
This motion has been signed by a total of 51 MPs.
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