Epilepsy Deaths Register
EDM number 115 in 2013-14, proposed by Paul Burstow on 16/05/2013.
Categorised under the topics of Death and Diseases.
That this House notes that there is a serious gap in information on epilepsy mortality and congratulates SUDEP Action, the working name for Epilepsy Bereaved, on the launch of the Epilepsy Deaths Register; recognises that the last national audit of epilepsy-related deaths led by SUDEP Action in 2002 found that 42 per cent of epilepsy-related deaths were potentially avoidable and was a powerful lever for driving improvements in patient care; and calls on the Department of Health and the Ministry of Justice to do all it can to support the development of the Epilepsy Deaths Register.
This motion has been signed by a total of 35 MPs.
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