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Duchenne Awareness Day

EDM number 318 in 2014-15, proposed by David Anderson on 03/09/2014.
Categorised under the topics of Diseases and Health services.

That this House acknowledges the first World Duchenne Awareness Day taking place on 7 September 2014; recognises the efforts of the Muscular Dystrophy Campaign and other Duchenne charities and support groups to highlight the need for Duchenne research, improved healthcare and independent living across the UK; notes the Muscular Dystrophy Campaign's leading role in fundraising for vital Duchenne research through its Duchenne Research Breakthrough Fund and Duchenne Forum initiative; further notes the new Fast Forward campaign launched by the Muscular Dystrophy Campaign calling for faster access to specialist treatments for muscle-wasting conditions which become available; acknowledges the work of the Trailblazers young campaigners network in promoting and enabling a better quality of life and independent living for young men with Duchenne muscular dystrophy; calls on the NHS to meet the required standards of care for more than 2,500 boys and young men in the UK with Duchenne muscular dystrophy through NHS neuromuscular service specifications; and urges the Government to ensure that people affected by Duchenne muscular dystrophy have rapid access to emerging treatments which are safe and effective.

This motion has been signed by a total of 53 MPs.

David Anderson03/09/2014BlaydonLabourProposed
Jim Shannon04/09/2014StrangfordDUPSeconded
Mark Durkan04/09/2014FoyleSocial Democratic and Labour PartySeconded
Peter Bottomley04/09/2014Worthing WestConservativeSeconded
Kelvin Hopkins04/09/2014Luton NorthLabourSeconded
Mary Glindon04/09/2014North TynesideLabourSeconded
Julian Lewis04/09/2014New Forest EastConservativeSigned
Martin Caton05/09/2014GowerLabourSigned
Virendra Sharma05/09/2014Ealing, SouthallLabourSigned
Alan Meale05/09/2014MansfieldLabourSigned
Margaret Ritchie05/09/2014South DownSocial Democratic and Labour PartySigned
John Mann05/09/2014BassetlawLabourSigned
John Robertson05/09/2014Glasgow North WestLabourSigned
Jim Sheridan05/09/2014Paisley and Renfrewshire NorthLabourSigned
Hywel Francis05/09/2014AberavonLabourSigned
Jim Dobbin05/09/2014Heywood and MiddletonLabourSigned
Anne Begg08/09/2014Aberdeen SouthLabourSigned
Diane Abbott08/09/2014Hackney North and Stoke NewingtonLabourSigned
Alex Cunningham08/09/2014Stockton NorthLabourSigned
David Simpson08/09/2014Upper BannDUPSigned
Graham Stringer08/09/2014Blackley and BroughtonLabourSigned
Mike Hancock09/09/2014Portsmouth SouthLiberal DemocratSigned
Gregory Campbell09/09/2014East LondonderryDUPSigned
John Leech09/09/2014Manchester, WithingtonLiberal DemocratSigned
Greg Mulholland09/09/2014Leeds North WestLiberal DemocratSigned
Elfyn Llwyd09/09/2014Dwyfor MeirionnyddPlaid CymruSigned
Joan Ruddock09/09/2014Lewisham, DeptfordLabourSigned
Dennis Skinner09/09/2014BolsoverLabourSigned
Jimmy Hood09/09/2014Lanark and Hamilton EastLabourSigned
Grahame Morris10/09/2014EasingtonLabourSigned
William McCrea10/09/2014South AntrimDUPSigned
Michael Weir10/09/2014AngusScottish National PartySigned
Jeffrey M Donaldson10/09/2014Lagan ValleyDUPSigned
Steve Rotheram10/09/2014Liverpool, WaltonLabourSigned
Jeremy Corbyn10/09/2014Islington NorthLabourSigned
Lady Hermon10/09/2014North DownIndependentSigned
Valerie Vaz11/09/2014Walsall SouthLabourSigned
Andrew George11/09/2014St IvesLiberal DemocratSigned
Tracey Crouch11/09/2014Chatham and AylesfordConservativeSigned
Clive Betts12/09/2014Sheffield South EastLabourSigned
John McDonnell12/09/2014Hayes and HarlingtonLabourSigned
Paul Flynn12/09/2014Newport WestLabourSigned
Sammy Wilson12/09/2014East AntrimDUPSigned
Yasmin Qureshi13/10/2014Bolton South EastLabourSigned
Adrian Sanders13/10/2014TorbayLiberal DemocratSigned
Alasdair McDonnell13/10/2014Belfast SouthSocial Democratic and Labour PartySigned
Robert Walter13/10/2014North DorsetConservativeSigned
Tony Cunningham13/10/2014WorkingtonLabourSigned
Frank Doran13/10/2014Aberdeen NorthLabourSigned
Roger Godsiff15/10/2014Birmingham, Hall GreenLabourSigned
Graeme Morrice17/10/2014LivingstonLabourSigned
David Crausby21/10/2014Bolton North EastLabourSigned
George Galloway05/11/2014Bradford WestRespectSigned

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