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Approval For Duchenne Muscular Dystrophy Treatment, Translarna

EDM number 1382 in 2015-16, proposed by Mary Glindon on 18/04/2016.
Categorised under the topics of Diseases and Health services.

That this House welcomes the decision by the National Institute for Health and Care Excellence (NICE) to recommend the Duchenne muscular dystrophy treatment, Translarna, for funding by NHS England, as a result of a Managed Access Agreement; notes that Translama is the first ever approved drug to treat an underlying genetic cause of Duchenne muscular dystrophy; recognises the tireless campaigning by patients and families throughout the NHS England and NICE processes calling for access to Translama; acknowledges the vital role that Muscular Dystrophy UK and Action Duchenne have played as patient organisation stakeholders during the NICE assessment process; further recognises the role of other charities in pressing for access to Translama; further notes with concern the announcement by the Scottish Medicines Consortium to recommend that Translarna not be approved for funding by NHS Scotland; and calls on NHS England to shorten implementation from three months so that the drug is available as quickly as possible.

This motion has been signed by a total of 28 MPs.

MPDateConstituencyPartyType
Mary Glindon18/04/2016North TynesideLabourProposed
Jim Cunningham18/04/2016Coventry SouthLabourSeconded
Peter Bottomley18/04/2016Worthing WestConservativeSeconded
Mark Durkan18/04/2016FoyleSocial Democratic and Labour PartySeconded
Jim Shannon19/04/2016StrangfordDUPSeconded
Margaret Ritchie19/04/2016South DownSocial Democratic and Labour PartySeconded
Greg Mulholland19/04/2016Leeds North WestLiberal DemocratSigned
Ronnie Campbell19/04/2016Blyth ValleyLabourSigned
Ian Mearns20/04/2016GatesheadLabourSigned
Chris Stephens20/04/2016Glasgow South WestScottish National PartySigned
David Amess20/04/2016Southend WestConservativeSigned
Lady Hermon20/04/2016North DownIndependentSigned
Clive Betts20/04/2016Sheffield South EastLabourSigned
David Simpson20/04/2016Upper BannDUPSigned
Kelvin Hopkins20/04/2016Luton NorthLabourSigned
Helen Hayes20/04/2016Dulwich and West NorwoodLabourSigned
Alasdair McDonnell21/04/2016Belfast SouthSocial Democratic and Labour PartySigned
Bob Blackman21/04/2016Harrow EastConservativeSigned
Danny Kinahan25/04/2016South AntrimUUPSigned
Fiona Mactaggart25/04/2016SloughLabourSigned
Gary Streeter25/04/2016South West DevonConservativeSigned
Paul Monaghan25/04/2016Caithness, Sutherland and Easter RossScottish National PartySigned
Alan Meale25/04/2016MansfieldLabourSigned
Roger Godsiff25/04/2016Birmingham, Hall GreenLabourSigned
Rosie Cooper26/04/2016West LancashireLabourSigned
Virendra Sharma26/04/2016Ealing, SouthallLabourSigned
David Crausby27/04/2016Bolton North EastLabourSigned
Gerald Howarth28/04/2016AldershotConservativeSigned

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