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Huntington's Disease

EDM number 508 in 2016-17, proposed by Greg Mulholland on 10/10/2016.
Categorised under the topics of Charities, Diseases, Health education and preventive medicine and Health services.

That this House notes that Huntington's disease is a rare neuropsychiatric illness that is hereditary, with the child of an affected parent having a 50 per cent chance of inheriting the mutant gene; further notes that Huntington's disease affects 12 people out of every 100,000 in the UK, which would equate to over 7,600 people across the country; also notes that while some symptoms can be responded to with medication such as anti-depressants, and for involuntary movement, there is no effective treatment or any cure for the disease; praises the work of the Huntington's Disease Association in supporting families across the country, including through providing Specialist Huntington's Disease Advisers in every county; notes that the Huntington's Disease Association also provides training and education to health and social care professionals due to the rarity and complexity of the condition; welcomes the work being undertaken through the UK Strategy for Rare Diseases to improve the lives of all those with rare diseases and their families; also welcomes the establishment of the Rare Diseases Translational Research Collaboration to support discoveries and research on rare diseases such as Huntington's disease; notes that the Huntington's Disease Association has called on the National Institute for Health and Care Excellence (NICE) to develop guidelines for treating the disease; therefore calls on NICE to look at developing such guidelines so that the care of patients with the disease can be further improved; and further calls on the Government to do what it can to encourage the development of such guidelines.

This motion has been signed by a total of 23 MPs.

MPDateConstituencyPartyType
Gavin Robinson05/01/2016Belfast EastDUPSigned
Greg Mulholland10/10/2016Leeds North WestLiberal DemocratProposed
Mark Durkan11/10/2016FoyleSocial Democratic and Labour PartySeconded
Jim Shannon11/10/2016StrangfordDUPSeconded
Alison Thewliss11/10/2016Glasgow CentralScottish National PartySeconded
Natalie McGarry11/10/2016Glasgow EastScottish National PartySeconded
David Simpson11/10/2016Upper BannDUPSeconded
Chris Stephens11/10/2016Glasgow South WestScottish National PartySigned
Margaret Ritchie12/10/2016South DownSocial Democratic and Labour PartySigned
Nigel Dodds12/10/2016Belfast NorthDUPSigned
Jim Cunningham12/10/2016Coventry SouthLabourSigned
Lady Hermon12/10/2016North DownIndependentSigned
Martyn Day12/10/2016Linlithgow and East FalkirkScottish National PartySigned
Peter Bottomley12/10/2016Worthing WestConservativeSigned
Mary Glindon13/10/2016North TynesideLabourSigned
Mark Williams13/10/2016CeredigionLiberal DemocratSigned
Alan Meale17/10/2016MansfieldLabourSigned
Chris Law18/10/2016Dundee WestScottish National PartySigned
Julian Lewis18/10/2016New Forest EastConservativeSigned
Lisa Cameron20/10/2016East Kilbride, Strathaven and LesmahagowScottish National PartySigned
Norman Lamb26/10/2016North NorfolkLiberal DemocratSigned
David Crausby28/10/2016Bolton North EastLabourSigned
Alasdair McDonnell16/11/2016Belfast SouthSocial Democratic and Labour PartySigned

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