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Access To Treatments For Duchenne Muscular Dystrophy, Tuberous Sclerosis And Morquio Disease

EDM number 819 in 2014-15, proposed by Greg Mulholland on 25/02/2015.
Categorised under the topics of Diseases and Health services.

That this House is aware that the pause in NHS England's decision-making process on prioritisation and specialised commissioning has created a block to accessing effective medicines for rare diseases where there are commissioning policies under development or assessment; notes that for conditions such as Duchenne muscular dystrophy, tuberous sclerosis and Morquio disease, where a cohort of more than five patients exists, there is no alternative viable route to NHS funding; further notes that as a result patients with need of treatment are left at risk of significant harm, including organ failure and avoidable death; also notes that around 180 patients with Duchenne muscular dystrophy, tuberous sclerosis and Morquio disease are currently being denied access; believes it is unethical to place patients at risk as a result of process inefficiencies; and calls on the Government to bring into force, without delay, interim measures to provide children and adults with rare diseases access to vital and proven medicines that will prevent organ deterioration and premature death.

This motion has been signed by a total of 63 MPs.

MPDateConstituencyPartyType
Greg Mulholland25/02/2015Leeds North WestLiberal DemocratProposed
Mike Hancock25/02/2015Portsmouth SouthLiberal DemocratSeconded
Mark Tami25/02/2015Alyn and DeesideLabourSeconded
Ronnie Campbell25/02/2015Blyth ValleyLabourSeconded
Andrew George25/02/2015St IvesLiberal DemocratSeconded
Mark Durkan25/02/2015FoyleSocial Democratic and Labour PartySeconded
David Anderson25/02/2015BlaydonLabourSigned
Kelvin Hopkins26/02/2015Luton NorthLabourSigned
Glenda Jackson26/02/2015Hampstead and KilburnLabourSigned
Annette Brooke26/02/2015Mid Dorset and North PooleLiberal DemocratSigned
John Leech26/02/2015Manchester, WithingtonLiberal DemocratSigned
Philip Davies27/02/2015ShipleyConservativeSigned
George Howarth27/02/2015KnowsleyLabourSigned
Steve Rotheram27/02/2015Liverpool, WaltonLabourSigned
Peter Bottomley27/02/2015Worthing WestConservativeSigned
Ian Mearns02/03/2015GatesheadLabourSigned
David Wright02/03/2015TelfordLabourSigned
Alan Meale03/03/2015MansfieldLabourSigned
Caroline Lucas03/03/2015Brighton, PavilionGreenSigned
Margaret Ritchie03/03/2015South DownSocial Democratic and Labour PartySigned
Mark Hunter03/03/2015CheadleLiberal DemocratSigned
Joan Ruddock03/03/2015Lewisham, DeptfordLabourSigned
Graham Stringer03/03/2015Blackley and BroughtonLabourSigned
John McDonnell03/03/2015Hayes and HarlingtonLabourSigned
Kevin Barron03/03/2015Rother ValleyLabourSigned
Mary Glindon04/03/2015North TynesideLabourSigned
Roger Godsiff04/03/2015Birmingham, Hall GreenLabourSigned
David Crausby04/03/2015Bolton North EastLabourSigned
David Ward04/03/2015Bradford EastLiberal DemocratSigned
Jeremy Corbyn04/03/2015Islington NorthLabourSigned
Martin Caton04/03/2015GowerLabourSigned
Adrian Sanders04/03/2015TorbayLiberal DemocratSigned
Lady Hermon04/03/2015North DownIndependentSigned
William McCrea04/03/2015South AntrimDUPSigned
Virendra Sharma04/03/2015Ealing, SouthallLabourSigned
Sandra Osborne04/03/2015Ayr, Carrick and CumnockLabourSigned
Liz McInnes04/03/2015Heywood and MiddletonLabourSigned
Greg Knight04/03/2015East YorkshireConservativeSigned
Yasmin Qureshi05/03/2015Bolton South EastLabourSigned
Elfyn Llwyd05/03/2015Dwyfor MeirionnyddPlaid CymruSigned
George Galloway06/03/2015Bradford WestRespectSigned
Jim Shannon09/03/2015StrangfordDUPSigned
Jeffrey M Donaldson09/03/2015Lagan ValleyDUPSigned
David Simpson09/03/2015Upper BannDUPSigned
Neil Carmichael09/03/2015StroudConservativeSigned
John Robertson09/03/2015Glasgow North WestLabourSigned
Barry Sheerman09/03/2015HuddersfieldLabourSigned
Paul Farrelly09/03/2015Newcastle-under-LymeLabourSigned
Julian Huppert09/03/2015CambridgeLiberal DemocratSigned
Grahame Morris09/03/2015EasingtonLabourSigned
Menzies Campbell10/03/2015North East FifeLiberal DemocratSigned
Jonathan Edwards10/03/2015Carmarthen East and DinefwrPlaid CymruSigned
Clive Betts11/03/2015Sheffield South EastLabourSigned
Anne Main12/03/2015St AlbansConservativeSigned
Nigel Dodds12/03/2015Belfast NorthDUPSigned
Mike Wood16/03/2015Batley and SpenLabourSigned
David Blunkett16/03/2015Sheffield, Brightside and HillsboroughLabourSigned
Gerald Kaufman17/03/2015Manchester, GortonLabourSigned
Jim Cunningham17/03/2015Coventry SouthLabourSigned
Chris Williamson18/03/2015Derby NorthLabourSigned
Geraint Davies23/03/2015Swansea WestLabourSigned
John Whittingdale24/03/2015MaldonConservativeSigned
Sarah Champion24/03/2015RotherhamLabourSigned

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