Duchenne Muscular Dystrophy

EDM number 327 in 2005-06, proposed by David Anderson on 14/06/2005.

That this House recognises that on average two young people die every week in the UK from the genetic severe muscle wasting disease Duchenne muscular dystrophy (DMD); congratulates the Department of Health for its initiative in providing £1.6 million to establish the MDEX consortium of researchers to start the first phase of a clinical trial in the UK for a gene therapy for DMD; and calls upon the Secretary of State for Health to support the aims of the Race Against Time Campaign organised by Parent Project UK, the Muscular Dystrophy Campaign and the Duchenne Family Support Group to provide £20 million of further funding to accelerate the MDEX project and other research towards a cure or treatment for this devastating disease.

This motion has been signed by a total of 157 MPs.