Action Duchenne

EDM number 1722 in 2007-08, proposed by Alan Meale on 09/06/2008.
Categorised under the topics of Diseases and Health services.

That this House notes the publication of research carried out by members of the Action Duchenne organisation on consultation with parents, patients and clinicians connected with the illness highlighting the need for higher levels of Government funding in areas such as extra clinical trials, access to new drugs and treatments for sufferers, together with the establishment of specialist centres manned by multidisciplinary teams throughout the UK; and calls on the Government to take seriously this cry for support from those in the front line of medical need.

This motion has been signed by a total of 69 MPs, 1 of these signatures have been withdrawn.