Neuromuscular Support Services

EDM number 1851 in 2008-09, proposed by David Anderson on 13/07/2009.
Categorised under the topics of Diseases and Health services.

That this House welcomes the launch of the North East Muscle Group; notes that the new group is led by local families and people affected by muscular dystrophy and related neuromuscular conditions who will campaign to improve access to essential specialist care and support; is concerned to learn of the serious problems affecting the 2,500 people with muscular dystrophy and related neuromuscular conditions living in the North East region; further notes that access to multi-disciplinary specialist care improves overall health outcomes and survival for patients with muscular dystrophy and related neuromuscular conditions; calls on the North East Specialised Commissioning Group, local primary care trusts and the Strategic Health Authority to take forward a review of neuromuscular services which will identify areas of best practice and gaps in NHS service provision; and praises the campaign led by the Muscular Dystrophy Campaign, local families, health professionals and experts in these conditions who will work together to fight for good access to clinically effective, first class, specialised neuromuscular services across the North East region.

This motion has been signed by a total of 32 MPs.