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Muscular Dystrophy

EDM number 1980 in 2008-09, proposed by Simon Burns on 12/10/2009.
Categorised under the topics of Diseases and Health services.

That this House welcomes the launch of the East of England Muscle Group; notes that the new group is led by local families and people affected by muscular dystrophy and related neuromuscular conditions who will campaign to improve access to essential specialist care and support; is concerned to learn of the serious problems affecting the 5,500 people with muscular dystrophy and related neuromuscular conditions living in the East of England; further notes that access to multi-disciplinary specialist care improves overall health outcomes and survival for patients with muscular dystrophy and related neuromuscular conditions; is deeply concerned that some patients are being denied access to multi-disciplinary specialist care; calls on the East of England Specialised Commissioning Group, local primary care trusts and the Strategic Health Authority to take forward a review of neuromuscular services which will identify areas of best practice and gaps in NHS service provision; and praises the campaign led by the Muscular Dystrophy Campaign, local families, health professionals and experts in these conditions who will work together to fight for good access to clinically effective, first class, specialised neuromuscular services across the East of England region.

This motion has been signed by a total of 43 MPs.

MPDateConstituencyPartyType
Simon Burns12/10/2009West ChelmsfordConservativeProposed
Lynne Jones12/10/2009Birmingham, Selly OakLabourSeconded
John Battle12/10/2009Leeds WestLabourSeconded
Lindsay Hoyle12/10/2009ChorleyLabourSeconded
Lee Scott12/10/2009Ilford NorthConservativeSeconded
Mark Durkan12/10/2009FoyleSocial Democratic and Labour PartySeconded
John McDonnell13/10/2009Hayes and HarlingtonLabourSigned
John Leech13/10/2009Manchester, WithingtonLiberal DemocratSigned
Mike Hancock13/10/2009Portsmouth SouthLiberal DemocratSigned
Jeremy Corbyn13/10/2009Islington NorthLabourSigned
Martin Caton13/10/2009GowerLabourSigned
Chris McCafferty13/10/2009Calder ValleyLabourSigned
Brian Iddon13/10/2009Bolton South EastLabourSigned
Bob Spink13/10/2009Castle PointIndependentSigned
David Simpson13/10/2009Upper BannDUPSigned
Bob Russell13/10/2009ColchesterLiberal DemocratSigned
Iris Robinson13/10/2009StrangfordDUPSigned
Dai Davies14/10/2009Blaenau GwentIndependentSigned
Rudi Vis14/10/2009Finchley and Golders GreenLabourSigned
Jim Dobbin14/10/2009Heywood and MiddletonLabourSigned
Ronnie Campbell14/10/2009Blyth ValleyLabourSigned
William McCrea14/10/2009South AntrimDUPSigned
Stephen Hepburn14/10/2009JarrowLabourSigned
Alan Simpson14/10/2009Nottingham SouthLabourSigned
Laura Moffatt14/10/2009CrawleyLabourSigned
Andy Reed15/10/2009LoughboroughLabourSigned
Lady Hermon15/10/2009North DownUUPSigned
Annette Brooke15/10/2009Mid Dorset and North PooleLiberal DemocratSigned
David Drew15/10/2009StroudLabourSigned
David Anderson15/10/2009BlaydonLabourSigned
Stewart Jackson19/10/2009PeterboroughConservativeSigned
Andrew George19/10/2009St IvesLiberal DemocratSigned
Ann Cryer19/10/2009KeighleyLabourSigned
Andrew Rosindell20/10/2009RomfordConservativeSigned
Kelvin Hopkins20/10/2009Luton NorthLabourSigned
Edward Davey20/10/2009Kingston and SurbitonLiberal DemocratSigned
Denis Murphy21/10/2009WansbeckLabourSigned
Eddie McGrady22/10/2009South DownSocial Democratic and Labour PartySigned
Bill Etherington22/10/2009Sunderland NorthLabourSigned
Frank Cook26/10/2009Stockton NorthLabourSigned
Nigel Evans26/10/2009Ribble ValleyConservativeSigned
Janet Anderson26/10/2009Rossendale and DarwenLabourSigned
Brian Jenkins27/10/2009TamworthLabourSigned

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